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  • First year of Rare Disease Support Scheme
  • by Eo, Yun-Ho | Nov 4, 2019 08:13am
Daily Pharm¡¯s in-depth review: benefits gained but still a room to grow
Post-diagnosis Special Case subject roster unified and benefits 1800 patients
Patients still suffering from lack of drug access, in need of regulatory support
The biggest issue of the policy is ¡®lack of interest¡¯. ¡®Rare disease¡¯ is not a specific categorization, but rather it is designated based on frequency of diagnosis. Korea defines ¡®rare disease¡¯ as a disease diagnosed to less than 20,000 people.

With small patient size and lack of drug, these diseases are in dire need of new drug. But the voices of small handful of patients are easily lost in the air. At the moment in Korea, 951 diseases are designated as subject for Rare Disease Medical Aid Program, in which 927 of them are eligible for special case benefit.

The total of 927 consists of 827 rare diseases as defined by the National Health Insurance special case copayment benefit system, and about 100 mor
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