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  • [two thousandth]Toxins accumulated in Soyul's body every day
  • by Jung, Sae-Im | translator Kim, Jung-Ju | Jun 21, 2023 05:50am
Medicine needed desperately
Soyul was diagnosed with a rare genetic disease of mucolipidosis type 2 at the age of one
Mucolipids accumulate and symptoms such as heart disease, bone contracture, and corneal opacity
Most die before age 10

Soyul, who turned 5 this year, stopped growing at 80cm and is no longer growing. Her arms and legs are not straight and straight. If you try to forcefully stretch it, you could break a bone. This is because Soyul's bone density is low enough to be found in an elderly person in his 80s. Soyul also has carpal tunnel syndrome, which affects 7 out of 10 people in their 70s. Born in 2019 at 2.8kg, Soyul met the world with a dislocated hip joint. When she was about six months old, she also suffered an inguinal hernia where her intestines protruded into her groin. Soyul's small vertebrae seemed to be slightly bent. Her parents, who were worried that their child was not growing well from the inside out, thought that Soyul m
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